Sunday, January 18, 2009

Ack!

So, the "great" state of California is in the middle of a budget crisis. Arnold is refusing to budge, and so things aren't getting paid out...things like Needlenoggin's State Disability checks. Oh, and wheelchairs aren't getting approved through MediCal right now either. So, even though the hospital wants his loaner-chair back, he won't have one from MediCal until June.

So, wheelchairs run about $2-3K out of pocket, and Needlenoggin isn't even getting his $400 a month from the state. Couple that with his out-of-pocket physical therapy ($120 a pop), his rent and bills ($1500 a month) and his part-time medical caregivers (so that I can feed my kids and put them to bed) (between the two it is about $1300 a month), his computer biting the big one (and getting a surprise $120 fee for the computer) and Rorysaurus starting preschool ($700 a month) on Monday, and you can see why I've begun to panic. Needlenoggin's care alone costs more than Tuffy makes in a month (not to mention our rent, food, bills, insurance, etc). I'm afraid we're going to end up going bankrupt before the state steps up like it is supposed to in cases of the severely disabled or Needlenoggin gets a dime from the people who are responsible for his injuries.

My folks are paying for most of the caregivers right now, but the rest of this is on us, and we don't have that kind of money. When we got my scholarship, Needlenoggin and I splurged on a birthday gift for DH (a new camera, since ours died) at $100...$50 from each of us. That was our big expenditure with tax refunds and a scholarship check...and we paid down some of our (now huge) credit card debt. Thing is, Needlnoggin is SUPPOSED to have Supplemental Security Income and he's supposed to have In Home Support Services and In Home Operations money (the people who are supposed to pay for his care in home (namely paying me so I can keep him housed and fed and keep Rory in school), but the soonest we'll be getting any of that covered is now May. May!

So the state has left its most dependent, at-risk populations, with no resources, to fend for themselves while the legislature works to ensure that the wealthiest Californians keep paying low taxes. The fact that they can do this while simultaneously screwing the public school system, road repairs and health care is awesome. Way to go, CA!

37 comments:

Anonymous said...

I hope you have sent, or will consider sending a copy of your rant to your governor and all your state reps.

big hugs to you all!

Lisa in Austin

Mara from Motherofalltrips said...

Oh man. I had hoped things would get easier not harder in 2009. I'm praying hard for you all - let us know if there's anything else we can do to help.

Anonymous said...

Do you still have the paypal account (or whatever it was)?

We would like to help, but I hate to snail mail a check across country. If that's the only way, is the address and account # still good (when I click the button)?

It isn't much, but I'm guessing every little bit helps :)

Hugs!!

face121 from MT

Anonymous said...

Round peg,

you might consider putting a version of this over at calitics.com, and I agree with Lisa that it's worth the copy-paste to send it to all your state reps.

Take care,

shenanigans

GiGi said...

Round Peg,
Do you have a social worker? If not, get one and s/he should be able to get a handle on all of this for you. If you do, and they aren't, you need to find one that can (in your spare time and all....). Also, you and Tuffy should not go into bankruptcy over this...he is not your dependent (unless you made him one legally). Also, did you ever get a good lawyer to deal with the landlord? S/he and/or the insurance company should be shouldering a lot of this.

Hugs to you and yours - this is so frustrating to read, I can't imagine living it.
~GiGi

Anonymous said...

And the last entry was so optimistic, too...:(

You are still in my prayers!

~Lydia
from Curves

GiGi said...

Tuffy,
You left a comment on my blog re: social workers and I commented back to email me - duncjill at fuse dot net

~GiGi/Jill

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