tag:blogger.com,1999:blog-7344601430871696660.post3882742192019875410..comments2023-11-05T01:29:18.045-08:00Comments on <center>Mostly Medical Misadventures & Mishaps</center>: Birthday and BureaucracyRound Peg Inna Square Holehttp://www.blogger.com/profile/01079627060146425617noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7344601430871696660.post-88405587890657608582008-08-19T10:59:00.000-07:002008-08-19T10:59:00.000-07:00Coordinating services is such a beast. Why do fami...Coordinating services is such a beast. Why do families have to re-invent the wheel? Ugh. Do you have a social worker either through the center or the hospital who can help you? Good luck today with your surgery and happy (belated) b-day wishes to Rory. Hang in there!!!!GiGihttps://www.blogger.com/profile/04043350973772922297noreply@blogger.comtag:blogger.com,1999:blog-7344601430871696660.post-13900628230548239632008-08-19T08:44:00.000-07:002008-08-19T08:44:00.000-07:00I've been following along since Erin (a friend of ...I've been following along since Erin (a friend of yours, I think?) linked to your story. Does Needlenoggin have a social worker? My cousin was paralyzed 2 years ago and although I'm not sure how his parents came into contact with her, they ended up getting a social worker from the county or state that was assigned to him (paid for by taxes). She helped make sure he got appropriate care and everything that he needed from the hospitals and care centers. She also facilitated the communication between the centers and the family. If you don't have one already you may want to look into it and if you have one but they're not doing all of this for you, you may want to contact a supervisor. They should be helping with the van and bed search, as well as clarifying any special types or models needed.Benhttps://www.blogger.com/profile/16999231327432470049noreply@blogger.com